Healing or not?

I haven’t posted since Alice started the Lachesis remedy a few weeks ago and as always the time has passed with healing peaks and troughs.
Before she started the 5 day course of the remedy her skin was already showing signs of slight improvement and it continued to heal over the rest of the week. The rash on her face and eyes had already been dying down and almost completely disappeared. Her neck also was getting better, it still had the rash all the way round but it was much paler and not as itchy. The other scaly dry areas, on her wrists, elbow creases and behind her knees were also calming. We were elated! Only days before her neck had start to crust and weep in areas so this was a dramatic turnaround.

On day 5 of the remedy we had a (first) appointment with a dermatologist. When the appointment has been made just over a week earlier Alice’s skin was probably at it’s worst having spread all over her face. At the appointment it was looking the best it had since we had stopped using steroids in February. I won’t go into too much detail about the appointment. He was very accepting of our wish to continue with her homeopathic treatment and avoid steroids and paraffin based moisturisers. He made some suggestions on moisturisers to try and also a steroid alternative called Elidel (I’ve not research it yet). On the other hand he was very dismissive of the natural creams we’re using without even reading the labels. “They contain chemicals, otherwise they wouldn’t work”, he commented. His opinion was that steroid use only becomes an issue when it is over used or used on more than 20% of the body. In a nutshell, using steroids with care would make it easier on Alice and easier on John and me.

Within a week I was nearly ready to reach for the hydrocortisone. Alice’s skin took another dramatic turn and near the end of last week she was sleeping badly and was scratching the night away. I ended up scolding her during the night to get her to take her hands from her neck and I felt awful the next morning. It just wasn’t fair on her. She was the one suffering and I was scolding her for it because I was sleep deprived?

At work on Friday, I emailed Alice’s homeopath. Her instructions had been to wait one week after the 5 day remedy and if there was improvement to then follow that up with one higher 200c dose. Well, there had been great healing but that had already become a distant memory. I wasn’t sure whether or not to give her the higher dose. I filled her in on the week’s progress, the visit to the skin specialist, the downturn in her skin condition and the tough night before. Elaine’s response was just what I needed. She thought the improvement the week before was most likely down to the remedy, but it was a weak dose which couldn’t sustain the improvement. We should definitely give her the higher dose. She provided a few encouraging words on how well we’ve been doing in coping without the steroids but said I should use the hydrocortisone when I really thought it was necessary, but to try not to do this often. It was the boost I needed and I was so relieved at the prospect that the remedy might be working after all.

Since Friday Alice’s skin has been improving. I was getting a tad over excited about it on Saturday – looking at Alice while she napped her neck looked almost a normal colour. I thought it was healing before my eyes! Then she woke up, cranky and irritated and rubbed and scratched her neck all afternoon. Since then though, there has been very slow progress so I do remain optimistic. It isn’t back to being as good as it was at the start of the month but it is getting there. Here’s hoping that we are now beginning to get somewhere.

Alice’s skin: Eyes and face good (pretty normal actually!). Neck is much less irritated tonight. Large stubborn patch on inner right wrist is improving but still a large area. Left hand, elbows creases, knees, backs of knees – no real change. Some days worse that others in these areas.

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4 thoughts on “Healing or not?

  1. Louise

    Sorry to hear you are going through such a tough time with your little one. Have you tried the ITSAN forum yet? There are lots of parents on there going through the same thing and also ones whose children have gone through steroid withdrawal and are now completely HEALED. I’m sure you would get lots of encouragement from their stories.

    BTW, I totally disagree with the dermatologist. I used steroid only on my face, which is much less than 20% of my body, but still got addicted to them and went through a horrible rebound when I stopped. Doctors do not realise how powerful steroids are and I am horrified that they continue to prescribe on babies and young kids.

    I am almost 18 months off steroids and my skin is almost completely healed. It is a very tough ride though and things can get worse before they get better. It was 6 months before my skin started healing.

    Reply
    1. goingnaturalmum Post author

      Hi Louise, thanks so much for reading and your lovely words. Oh and also,thank you adding me to your blog list! I saw a big jump in views of my blog!
      Yes I have been on the ITSAN website and I signed up to the forum but I haven’t really got past the welcome messages yet as I’ve had a some internet issues in the past few weeks.

      My initial reaction, though I’m not absolutely sure, is that I think Alice’s symptoms are still “normal” eczema and not the symptoms of steroid withdrawal. Luckily we hadn’t even got through one little tube on hydrocortizone and a few weeks of moderate steroid use isolated to one small area. I was uneasy about using them from the beginning and wish I hadn’t given in to the pressure. Although the eczema spread to her face and neck since coming off steroids I think it is more a case of her true eczema being allowed to come to the surface. I don’t think she is experiencing the severe withdrawal symptoms described by TSW sufferers. I was really quite shocked when I first read about the experiences of some TSW sufferers and very thankful that we were not having such a harrowing ordeal. On one other hand, strange though it sounds, it would be great if it was TSW, because we are now almost 3 months into withdrawal and as Alice is only 3 and was a light steroid user it might mean she is is well into her healing journey. But if it is still “normal” eczema, I don’t know when it will go away.
      Does this make sense?
      So, anyway, I am really hoping the homeopath cracks it! I will definitely have another look at the forum too..

      Louise, congratulations on reaching this far in your recovery, You are looking great and it was lovely to read that you had such a nice wedding anniversary weekend away!!

      Reply
  2. Tracy Scarpulla

    Hello,
    Sorry to hear about your little one suffering! I think it is wonderful you are using homeopathy regardless of whether this is eczema or TSW. If it is just eczema she will more than likely go through ups and downs with flares. Sometimes years will pass and then she will flare again – I had eczema starting at age 6 months. As a kid I would have a patch here and there, but when I turned 10, it flared really bad (hormones probably), and I went on the topical steroid bandwagon. She will outgrow eczema by her early 20’s according to the typical eczema path. As for now, keep doing what you are doing. I am trying a multi-system approach to my TSW. I am eating a 100% natural diet (with no sugar, wheat, or dairy the first 4 weeks), homeopathy, colloidal silver as needed for infection, probiotics, dead sea salt baths, and herbal salves (arriving today!). I know it will not bring TSW to a halt or make it better, but I am hoping that arming my body with the needed nutrients, it may heal slightly quicker than if I did nothing. There will be no way to tell obviously, but I do know that we are what we eat and what we put in and on our bodies. I wish you all the very best for your little one – I am very sure this is not easy on you. Hang in there!

    Reply
    1. goingnaturalmum Post author

      Hi Tracy, thanks so much for your lovely, enocuraging comments and for reading. We have had no obvious results from homeopathy yet, but we are persevering! Alice’s skin has calmed down alot recently after we got through the first few months without steroids when it did go a bit crazy! It was tough when her neck, eyes and face were pretty bad but we are coping much better now that she no longer has it on her face. She continually has it on her neck, wrists, arms, backs of knees but we seem to be coping fairly well at the moment without steroids which is a relief. Every week to 10 days it seems to get really angry for a few days and then goes back to being ‘managable’ for another week or so. Alot better that March/April when it just seemed to be getting worse. And I have stopped fretting about whether is is TSW or not!!
      I wish you all the best with your recovery. I agree with you 100% – we are what we eat! Although it is difficult to convince a very picky 3 year old to eat the good stuff! I tried to switch to soya milk and she hated it!! Thanks again x

      Reply

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